Pakistan to issue first ever haemophilia guidelines for patients

• National Haemophilia Treatment Guideline Conference held in Karachi.
• “There is no government level  treatment facility for haemophilia patient.”
• Experts said  modern treatment facility should be established in Pakistan.

KARACHI: Haemophilia Foundation Pakistan in collaboration with World Haemophilia Federation has started drafting of guidelines to ensure the treatment of haemophilia patients as per international standards.

In this regard, a National Haemophilia Treatment Guideline Conference was organized in a local hotel under Haemophilia Welfare Society Karachi in which medical experts from different cities of the country participated.
Medical experts said that with this guideline, doctors and other medical staff will be able to provide treatment and care to hemophilia patients according to international standards and haemophilia patients will also be able to live normal life like healthy people.

Speaking at the event, Raheel Ahmed, founder, and CEO of Haemophilia Welfare Society Karachi said that there is no government-level treatment facility for such patients in Pakistan and accordingly there is no haemophilia hospital, due to which the people affected by it and their families suffered here and there for treatment.

He said that there may be more than 5,500 haemophilia patients in Sindh alone, out of which more than 1,000 have been registered with the Haemophilia Welfare Society.

Other speakers included Director Sindh Blood Transfusion Authority Dr. Durre Naz, Dr. Munira Burhani, Dr. Tahira Zafar, Dr. Shehla Sohail, Dr. Shabneez Hussain, President and Advisor Hemophilia Foundation Pakistan Masood Farid, National Hemophilia Coordinator Pakistan Dr. Hassan Abbas Zaheer, Dr. Sarfraz Jafri, Secretary General Pakistan Medical Association Center Dr. Abdul Ghaffar Shoro, Dr. Lubna Zafar, Anisur Rehman, Syed Fakhr Alam, Hemophilia Foundation President Abbas Ali and Advisor Hasan Raza and others.

On this occasion, the speakers appreciated the efforts of the World Federation of Haemophilia for providing free injections to patients in Pakistan on a humanitarian basis.

Medical experts agreed that a modern haemophilia treatment facility should be established in Pakistan. In this regard, this guideline should also be approved soon and its implementation should be started so that haemophilia patients can be treated.

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During the ceremony, Dr. Durre Naz was also crowned by the Hemophilia Women’s Group in recognition of her services. Shields were also presented to other guests and speakers.